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Adaptive Clothing and the CDKL5 Life

Adaptive clothing is a relatively new term within the past decade or so, but it seems like it has just exploded in recent years! Now you can find lots of adaptive items in mainstream stores.

In episode 13 of the CDKL5 in Color podcast we talk about how we dress our kids (both adaptive and traditional clothing) for everyday wear, shoes, swimwear, and more! We also chat about how our fashion has changed now that caregiving is part of life.

For Our Kids


Shoes: We love Billy's, and Target even sells a less expensive version online! Also loved is Princepard shows as well as PLAE. SmartKnit seamless socks are also a hit!

Clothing: Macy's, Costco, Walmart, & Carter's are all hits for good deals and great sales. Kohl's, Target, & JCPenny all have an adaptive line! Incredible to see the availability in these mainstream stores!

Swimwear: Reusable swim diapers are popular and can be found easily on Amazon. Amanda's daughter wears a buoyant wetsuit for swimming, which makes it easier as a caregiver to be hands-on with a good grip.

For Ourselves


Amanda and I both agree that our own personal fashion has changed dramatically since becoming parent caregivers to someone living with CDKL5 deficiency disorder.

Some considerations we have are for breathability and comfort, as caregiving is physical! Activewear is daily wear. Additionally, paying attention to durability (our kids can grab on to us for support!) and what is dangling where (jewelry is not happening!) is critical.

Dressing my son is physical. The reaching and the lifting and the pulling and the turning and the rolling. I'm not going to say it's a workout, but it's physical. And most days when I'm pushing him out the door, I've got sweat rolling down my forehead.

Living the CDKL5 life means making all kids of adaptations and clothing is not an exception. The more mainstream adaptive clothing becomes, the better for everyone with mobility or additional needs.

Do you have adaptive items you love? Share with us!

Until next time 💚


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Disclaimer: CDKL5 in Color (podcast, website, blog, text and visual content, social media, and other creative works) constitutes lived experience and is not intended as medical advice. Always consult your doctor.


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