What Do You Bring to the Hospital?

In episode 10 of the CDKL5 in Color podcast we talk all things hospitalization, including what makes up our hospital "GO" bag.

Being in the hospital is generally miserable, but having what you need (plus some comfort items) can make it a better experience. If you plan ahead and make a list, packing a go-bag can happen quickly.

Necessities for the Hospital

These are the things you cannot go without or that would be hard to get if needed. Things like:

• Medications (especially clinical trial or specialty pharmacy meds)
• Toiletries
• Change of clothes
• Phone charger
• Money

These are important to put on a list so you don't forget them. Sometimes heading to the hospital happens quickly, and the situation is likely stressful, so having a list prepared ahead of time ensures you don't have to think too much and can focus on more important things.

Comfort Items are Important Too

Comfort items make all the difference! It really is the little things that can brighten your day and help make your stay as tolerable as possible. And these are not only for the caregiver, but for your child too. Some examples:

• Comfortable clothing
• Personal care extras
• Snacks, candy, treats
• Entertainment (iPad, toys, mini-projector)
• Favorite non-alcoholic drinks
• Pillow, bedding items

Being in the hospital is not fun, but when your child has a diagnosis of CDKL5 deficiency disorder, it is sometimes just part of life. Here's hoping you can make the best of it.

What would you add to the list?

Until next time 💚

Like this blog? Tell your friends!

Be sure to check out our podcast and follow us on social media!

@CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube

www.CDKL5inColor.com

--------------------------------------------

Disclaimer: CDKL5 in Color (podcast, website, blog, text and visual content, social media, and other creative works) constitutes lived experience and is not intended as medical advice. Always consult your doctor.